Pengalaman Fisik, Psikologi dan Sosial Pasien yang Menderita Guillain Bare Sindrom Pertama Kali: Case Report
DOI:
https://doi.org/10.36590/kepo.v5i2.955Keywords:
guillain barre syndrome, pengalaman fisik, pengalaman psikologis, pengalaman sosialAbstract
Guillain-Barré Sindrom (GBS) merupakan penyakit langka yang diakibatkan oleh sistem kekebalan tubuh menyerang bagian sistem saraf tepi. Penyakit GBS dapat menimbulkan berbagai masalah baik fisik, psikologis maupun sosial. Tujuan dari penelitian ini adalah untuk mengidentifikasi pengalaman pasien GBS dari aspek fisik, psikologis dan sosial. Case report merupakan metode yang digunakan dalam penelitian ini. Subjek yang digunakan ialah seorang pasien berusia 20 tahun yang menderita penyakit GBS untuk pertama kali. Hasil penelitian menunjukkan bahwa pasien GBS menghadapi berbagai permasalahan seperti masalah fisik, psikologis maupun sosial. Secara fisik, pasien mengalami kelumpuhan pada seluruh ekstremitas, disfagia, disartria, pandangan kabur, facial palsy, respiratory failure dan kesulitan melakukan Activity Daily living (ADL). Sedangkan pengalaman psikologis yang dirasakan pasien GBS adalah kecemasan. Adapun pengalaman sosialnya berupa keterbatasan berinteraksi dan berkomunikasi serta keterbatasan dalam bekerja. Masalah fisik menjadi permasalahan utama pada pasien GBS karena dapat menimbulkan masalah psikologis dan sosial.
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References
Abdelmonem, S., Shehata, G.A., Abdelaziz, M.A., Mahgoub, A.A. 2018. Effect of Teaching Program on Nurse`S Performance Regarding Guillian Barre Syndrome Patients at Neurological Care Unit. Assiut Scientific Nursing Journal. 6(15), 46-52. Https://Doi.Org/10.21608/Asnj.2018.59651
Akanuwe, J.N.A., Laparidou, D., Curtis, F., Jackson, J., Hodgson, T.L., Siriwardena, A.N. 2020. Exploring The Experiences of Having Guillain-Barré Syndrome: A Qualitative Interview Study. Health Expectations. 23(5), 1338-1349. Https://Doi.Org/10.1111/Hex.13116
Andary, M.T., Oleszek, J.L., Maurelus, K., White-Mccrimmon, R.Y. 2022. Guillain-Barre Syndrome. Medscape. Https://Emedicine.Medscape.Com/Article/315632-Overview#A4.
Bahnasy, W.S., El-Heneedy, Y.A.E., El-Shamy, A.M., Badr, M.Y., Amer, R.A., Ibrahim, I.S.E. 2018. Sleep and Psychiatric Abnormalities in Gullian Barré Syndrome. Egyptian Journal of Neurology, Psychiatry and Neurosurgery. 54(5), 1-7. Https://Doi.Org/10.1186/S41983-018-0007-1
Dokoohaki, R., Molazem, Z., Rambod, M. 2020. Self-Management Experiences in Guillain Barre Syndrome Patients: A Phenomenological Study. Revista Latinoamericana De Hipertensión. 15(3), 189-194. https://www.revhipertension.com/rlh_3_2020/6_self_management_experiences.pdf
Hagen, K.M., Ousman, S.S. 2021. The Neuroimmunology of Guillain-Barré Syndrome and The Potential Role of an Aging Immune System. Frontiers in Aging Neuroscience. 12, 1-19. Https://Doi.Org/10.3389/Fnagi.2020.613628
Hidayat, C., Sugiarto, A., Aditianingsih, D., George, Y. 2018. Plasmafaresis pada Guilain Barre Syndrome dengan Sepsis. Majalah Anestesia dan Critical Care. 36(2), 77-86. https://macc.perdatin.org/index.php/my-journal/article/view/116
Hillyar, C., Nibber, A. 2020. Psychiatric Sequelae of Guillain-Barré Syndrome: Towards A Multidisciplinary Team Approach. Cureus. 12(2), 1-11. Https://Doi.Org/10.7759/Cureus.7051
Islam, Z., Papri, N., Ara, G., Ishaque, T., Alam, A.U., Jahan, I., Islam, B., Mohammad, Q.D. 2019. Risk Factors for Respiratory Failure in Guillain-Barré Syndrome in Bangladesh: A Prospective Study. Annals of Clinical and Translational Neurology. 6(2), 324-332. Https://Doi.Org/10.1002/Acn3.706
Konstantopoulos, K., Giakoumettis, D. 2023. Chapter 3 Cerebral Organization for Speech/ Language and Neuroanatomy of Speech/Language Disorders. Neuroimaging in Neurogenic Communication Disorders. Elsievier.
Laparidou, D., Curtis, F., Akanuwe, J., Jackson, J., Hodgson, T.L., Siriwardena, A.N. 2021. Patients’ Experiences and Perceptions of Guillain-Barré Syndrome: A Systematic Review and Meta-Synthesis of Qualitative Research. Plos One. 16, 1-20. Https://Doi.Org/10.1371/Journal.Pone.0245826
Lele, J.S.A., Berkanis, A.T., Tahu, S.K. 2020. Hubungan Peran Perawat sebagai Caregiver dan Komunikasi Interpersonal Perawat dengan Kepuasan Pasien (di Ruang Rawat Inap Cempaka dan Kelimutu RSUD Prof. Dr. W.Z. Johannes Kupang). Nursing Scientific Journal. 4(1), 186-191. https://www.neliti.com/id/publications/316281/perawat-hubungan-peran-caregiver-perawat-dan-komunikasi-interpersonal-perawat-de
Mua, E.G. 2020. Assessment of Nurses, Knowledge Toward Children with Guillain- Barre Syndrome at Pediatric Hospitals in Baghdad City. Iraqi Science of Jounal Noursing. 23, 66-75. https://www.researchgate.net/publication/342899320_Assessment_of_Nurses%27_Knowledge_toward_Children_with_Guillain-_Barre_Syndrome_at_Pediatric_Hospitals_in_Baghdad_City_Wea%27am_N_Kudhaer_MSCN_Eqbal_G_Mua%27ala_PhD_alkhlast
NINDS. 2023. Guillain-Barré Syndrome. National Institute of Neurological Disorders and Stroke URL. Https://Www.Ninds.Nih.Gov/Health-Information/Disorders/Guillain-Barre-Syndrome.
Oliveira, D.R. Da, C.A.B., Fernandez, R.N.M., Grippe, T.C., Baião, F.S., Duarte, R.L., Fernandez, D.J. 2021. Epidemiological and Clinical Aspects of Guillain-Barré Syndrome and Its Variants. Arquivos De Neuro-Psiquiatria. 79(6), 497-503. Https://Doi.Org/10.1590/0004-282X-ANP-2020-0314
Rea, P. 2015. Chapter 5 - Hindbrain (Rhombencephalon), In: Essential Clinical Anatomy of The Nervous System. Elsevier.
R.Sergent, S., Ashurst, J.V. 2023. Plasmaferesis. Start Pearl Publishing.
Sharma, K., Tengsupakul, S., Sanchez, O., Phaltas, R., Maertens, P. 2019. Guillain–Barré Syndrome with Unilateral Peripheral Facial and Bulbar Palsy in A Child: A Case Report. Open Medical Case Reports. Https://Doi.Org/10.1177/2050313x19838750
Shrinivasa, B., Marathuparambil, A., Nirmala, B.P., Srikanth, P. 2022. Psychosocial Issues Associated with Guillain-Barré Syndrome and Their Management: Case Descriptions. Journal of Health Sciences & Research. 12(2), 48-50. Https://Doi.Org/10.5005/Jp-Journals-10042-1106
Tsurayya, Z. 2021. Karakteristik Demografis dan Klinis Guillain-Barre Syndrome. [Skripsi]. Universitas Gadjah Mada Yogyakarta.
Wijayanti, S. 2016. Aspek Klinis dan Penatalaksanaan Guillain-Barré Syndrome. Acara Ilmiah Kepaniteraan Klinik Madya. Neurologi Fakultas Kedokteran Universitas Udayana Bali. 1-17
WHO. 2023. Guillain Barre Syndrom [WWW Document]. URL Https://Www.Who.Int/News-Room/Fact-Sheets/Detail/Guillain-Barré-Syndrome#:~:Text=Guillain-Barré Syndrome (GBS),Cases Of Guillain-Barré Syndrome (Accessed 11.28.23).
Zairinal, R.A. 2015. Gambaran Luaran Pasien Sindroma Guillain-Barre Menggunakan Erasmus GBS Outcome Score (EGOS) di Rumah Sakit Umum Pusat Nasional Cipto Mangunkusumo. [Karya Tulis Ilmiah]. Departemen of Neurologi Universitas Indonesia.
Zheng, P., Tian, D.C., Xiu, Y., Wang, Y., Shi, F.D. 2022. Incidence of Guillain-Barré Syndrome (GBS) in China: A National Population-Based Study. The Lancet Regional Health - Western Pacific. 18, 1-9. Https://Doi.Org/10.1016/J.Lanwpc.2021.100302
