Nursing Care of Patient's Family with Advance Nasopharynx Cancer: Case Report
DOI:
https://doi.org/10.36590/kepo.v6i1.1033Keywords:
palliative, nasopharyngeal cancer, family needsAbstract
Nasopharyngeal Cancer (NPC) is a life-threatening illness. Early palliative care approach is essential to improve the quality of life of patients and families. However, in the clinical settings, health professionals often consider families as providers who provide care for patients. Whereas in palliative care the family is a unit of care that have to be seen as a patient who needs support. This article is a case report nursing care to a family of a patient with advanced nasopharyngeal cancer. It is found that family needs include physical, psychological and health information. Based on the literature, there are several assessment and intervention guidelines such as the CARES intervention framework that can be applied by nurses in providing palliative care approach to families, especially in the health care system.
Downloads
References
Alam, S., Hannon, B., Zimmermann, C. 2020. Palliative Care for Family Caregivers. Jurnal of Clinical Oncology. 38(9), 926-936. https://doi.org/10.1200/jco.19.00018
Becqué, Y.N., Rietjens, J.A.C., Vander, H.A., Witkamp, E. 2021. How Nurses Support Family Caregivers in the Complex Context of End-of-Life Home Care: A Qualitative Study. BMC Palliat Care. 20(1), 1-9. https://doi.org/10.1186/s12904-021-00854-8
Chang, E.T., Ye, W., Zeng, Y.X., Adami, H.O. 2021. The Evolving Epidemiology of Nasopharyngeal Carcinoma. Cancer Epidemiol Biomarkers and Prevention. 30(6), 1035-1047. https://doi.org/10.1158/1055-9965.epi-20-1702
Dwijayanti, F., Prabawa, A., Besral, Herawati, C. 2020. The Five-Year Survival Rate of Patients with Nasopharyngeal Carcinoma Based on Tumor Response After Receiving Neoadjuvant Chemotherapy, Followed by Chemoradiation, in Indonesia: A Retrospective Study. Oncology. 98(3), 154–160. https://doi.org/10.1159/000504449
Glajchen, M., Goehring, A., Johns, H., Portenoy, R.K. 2022. Family Meetings in Palliative Care: Benefits and Barriers. Optiom in Oncology. 23, 658-667. https://doi.org/10.1007/s11864-022-00957-1
Longacre, M.L., Miller, M.F., Golant, M., Zaleta, A.K., Buzaglo, J.S. 2018. Care and Treatment Decisions in Cancer: The Role of The Family Caregiver. Journal Oncology Navigation Survivorship. 9(9), 354-362. https://www.jons-online.com/issues/2018/september-2018-vol-9-no-9/1977-care-and-treatment-decisions-in-cancer-the-role-of-the-family-caregiver
Martín, M.D., Espinosa, M.D.R., Gavira-López, Y., Holgado-Castro, C., López-Latorre, I., Borrallo-Riego, Á. 2023. Quality of Life in Caregivers of Cancer Patients: A Literature Review. International Journal of Environmental Research and Public Health. 20(2), 1-12. https://doi.org/10.3390/ijerph20021570
Mishra, S., Gulia, A., Satapathy, S., Gogia, A., Sharma, A., Bhatnagar, S. 2021. Caregiver Burden and Quality of Life Among Family Caregivers of Cancer Patients on Chemotherapy: A Prospective Observational Study. Indian Journal Palliative Care. 27(1), 109-112.
NCP. 2018. Clinical Practice Guidelines For Quality Palliative Care. National Coalition for Hospice and Palliative Care.
Nipp, R.D., El-Jawahri, A., Fishbein, J.N., Gallagher, E.R., Stagl, J.M., Park, E.R., Jackson, V.A., Pirl, W.F., Greer, J.A., Temel, J.S. 2016. Factors Associated with Depression and Anxiety Symptoms in Family Caregivers of Patients with Incurable Cancer. Journal of the European Society for Medical Oncology. 27(8), 1607-1612. https://doi.org/10.1093/annonc/mdw205
Nysaeter, T.M., Olsson, C., Sandsdalen, T., Hov, R., Larsson, M. 2024. Family Caregivers’ Preferences for Support When Caring for a Family Member with Cancer in Late Palliative Phase Wish to Die at Home–A Grounded Theory Study. BMC Palliat Care. 23(15), 1-12. https://doi.org/10.1186/s12904-024-01350-5
Ochoa, C.Y., Lunsford, N.B., Smith, J.L. 2020. Impact of Informal Cancer Caregiving Across the Cancer Experience: A Systematic Literature Review of Quality of Life. Palliat Support Care. 18(2), 220-240. https://doi.org/10.1017/s1478951519000622
Steele, R., Davies, B. 2015. Supporting Families in Palliative Care. Social Aspec of Care. 51-72. https://doi.org/10.1093/med/9780190244132.003.0003
Views, H. 2017. Guidelines To Writing A Clinical Case Report. Journal of The Gulf Heart A Association. 18(2), 14-15. https://doi.org/10.4103/1995-705x.217857.
Wittenberg, E., Goldsmith, J., Ragan, S.L., Parnell, T.A. 2020. Caring for The Family Caregiver. Oxford University Press.
WHO. 2020. Palliative Care. Geneva: World Health Organization.
